More News....

NEWS ON DYLAN............

Dylan's endocrinologist called me today to see how Dylan is doing with the meds and she gave me good and bad news.  Dylan is doing GREAT and feels good on the meds, that is the good news.  The bad news is, because he is responding so well to the medication it means that his adrenal gland in his brain is not working.  The adrenal gland in the brain triggers when to send cortisol into the body, and since Dylan's is not working properly, the medication, which is a steroid, takes the place of giving Dylan's body the cortisol that he needs, and that is why he feels so much better.

The doctor said he will need to be on this steroid for an undetermined amount of time, and that means his body will STOP making cortisol all together. 
Sooo, if Dylan gets very sick, has to have any surgery, breaks a bone, or ANYTHING that causes his body to be under a lot of physical stress, we have to call his doctor immediately b/c the dosage of the steroid will have to be increased dramatically.  I asked the doctor if this means emotional stress, and she said no, there is a difference between physical and emotional stress.  I also asked about side affects of the steroid, the doctor said, if I were to look up the medication on the internet it would show a lot of side affects, HOWEVER, Dylan's body needs this drug, b/c he is not producing it, so he will not have the side affects.
PLEASE CONTINUE to pray b/c we still have to find out what is going on with Dylan's eyes, and of course another MRI.

Thanks for ALL your SUPPORT and PRAYERS!