Thursday, November 11, 2010 at 6:56pm
Well friends I write to you all with a very heavy heart tonight!!! : (
Dylan
had his MRI with and without contrast this morning (had an IV placed
inn arm and fluid put in veins to see the brain tumor better), that went
well. Then after going to the wrong bldg 3x we ended up at The
Children's hospital where the Brain tumor center is.....our appt was
scheduled for 1230 and we did not get seen by the neurosurgeon until
145pm. His name is Dr. Grant, he told us basically that the tumor needs
to be taken out of Dylan's brain, we can wait, however, the longer we
wait the more chance we take of this tumor spreading to other locations
in the brain and into the spine! We saw the pictures of his MRI's taken
in June B4 1st surgery, Sept., right after radiation, and the one taken
today......the fluid looks good BUT the tumor has not decreased at all
in size from the radiation. The docs did say the radiation could still
be working but the tumor still needs to come out. After talking with
Dr. Grant, we saw the Brain tumor oncology specialist his name is hard
to pronounce so everybody calls him Dr. G, after reviewing all of
Dylan's tests and MRI's he agrees with Dr. Grant, that the tumor needs
to come out, sooner rather that later. This is a very SERIOUS IN DEPTH
surgery, Dylan would be in the hospital for approx. a week and his
recovery time and therapy would be much more involved with
this surgery. The neurosurgeon, Dr. Grant seems very comfortable with
this surgery and says he feels very comfortable with it because he has
done hundreds of surgeries similar to this. Mike asked both of the
doctors...."If this were your son, what option would you
choose......have the surgery right away or wait and see what happens?"
They both responded the same way.....they would get the surgery done and
not wait too long before getting it done. Mike and I have discussed
everything and have decided to have the surgery done, we just need to
call back the docs tomorrow and let them know our decision and what a
good time for us would be. We are going to see if the week after
Christmas is available, that way our family can enjoy a nice holiday
together beforehand. We also talked to Dylan about all this and he says
he wants the surgery after Christmas also. Mike and I are SCARED to
death about this decision and we hope we are making the right decision!
We don't want to wait very long because the tumor could spread and
grow, and we don't want to say let's wait and 3-4 months down the road
the tumor gets bigger and then is inoperable, if it were to spread to
his spine, surgery is not much of an option, the only thing that could
be done then would be more radiation to the spine. If it spreads to
different areas of the brain then the chances of a succesful operation
of getting all the cancer are VERY slim.So, we did not leave the
hospital until 415pm today, so we decided to stay one more night here at
the hotel to relax (if that's possible) and return home tomorrow. This
has been a very stressful, draining day and as I type this i am trying
to maintain composure in front of the kids, but the inside of me wants
to SCREAM AND CRY!! Please pray for our family as we travel and while
trying to figure out how to schedule everything for our family around
this upcoming surgery. We will be at church this weekend selling our
bracelets again in the lobby at all four services if anybody is
interested in purchasing them to help us out financially for our
upcoming trips and expenses.We will be home tomorrow, see you all when we return.
_________________________________________________________________
Saturday, November 13, 2010 at 12:30pm
We
made it home yesterday around 130pm, we were all drained, mentally and
physically. I took comfort in all the friends that sent their prayers
and thoughts via FB and email. I also cried and slept a lot today.......
As I was laying in the bed with our baby Kaylee, I was reading messages
and I just started crying again. At that time I just cried out to Jesus
and started praying to him about everything, mostly for peace with our
decision and guidance. As I finished praying, my sweet baby girl Kaylee
(only 16mnths), reached over with her baby blanket and started wiping my
tears away, saying "mama, mama" and giving me hugs and kisses! Ever
since that happened today I have been at peace and able to enjoy the
time with my family. To all parents out there.....time is so precious,
make the effort to put your family and especially your children first!
Don't think about it, or say well maybe tomorrow, or if only! You NEVER
know when your perfect world will be TURNED UPSIDE DOWN, and there may
not be a tomorrow!
Kerry
_________________________________________________________________
Monday, November 15, 2010 at 11:10am
Hi everybody,
well IT'S OFFICIAL.....Dylan's surgery date is NOV 24th, that's RIGHT,
the day before Thanksgiving! We needed to schedule his surgery before
the end of the year so that my husband would be able to accept donated
vacation from other employees at his work, and it has to be donated to
my husband before the end of the year or it's lost and Mike would not
get paid.....THAT WOULD NOT BE GOOD! Anyways the only 2 days available,
other than this week, were 11/24 or 12/20 and we really did not want
Dylan to be in the hospital during Christmas, so we chose next week. He
has PRE-OP screening and appointments on WED. 11/23, then on 11/24 an
MRI at 700am and SURGERY AT NOON! (unless something changes this is
pretty solid)I want tom clarify a couple things from my
last note.......the neurosurgeon at UVA originally told us that Dylan's
tumor was inoperable because he felt uncomfortable doing the surgery.
The Neurosurgeon at Duke feels comfortable doing this surgery b/c this
is ALL he does and he specializes in PEDIATRIC BRAIN TUMORS, the doc at
UVA did not; and that's the major difference of opinions, not to
mention, the ONLY Pediatric Brain Tumor SPECIALIST we got to see at
UVA lasted about 5mins and that was back in JUNE, (to diagnose the
cancer), we kept getting told we would see a specialist and had a couple
appts set up to see one and then mysteriously NEVER SAW ONE!So, moving
forward, please pray for Dylan and our family through this. Mike and I
feel this is the best decision for Dylan, and we have talked with Dylan
about all of this, he said, "I want it out mommy, it ruined my summer,
and I did not get to play football." Most of all we have prayed about
this, and it's in GOD'S HANDS now!I am in the process of trying to set
up a place to stay in Durham, we will be leaving on Monday 11/22, we
were told by the docs that Dylan will be in the hospital approx. one
week, that would be about DEC 1st. Mike's mom will be going with our
family to help take care of the girls and we can all rotate with Dylan
in the hospital. Dylan will not be able to eat Thanksgiving dinner
right after surgery, so we are going to try and put something together
this weekend so we can have one together before we leave.We will be
very busy trying to get everything together before we leave, so if
anybody has any questions please email them to me and I will respond as I
can. Thanks for all the prayers and support! (skykayd@hotmail.com)
The Prater Family
___________________________________________________________________________________
Tuesday, November 16, 2010 at 11:07pm
I
just wanted to let everybody know the exact date and times for Dylan
next week. We will be leaving for Duke on Monday November 22nd, so we
can get there and get situated where we are staying. Then on Tuesday
11/23 Dylan has a pre-op appt at 115pm, then will meet with the
neurosurgeon Dr. Grant, at 2pm. On WEDNESDAY he will have an MRI at
700am, then his surgery will be sometime around noon, we will not have an
exact time until that morning......I will let everybody know as soon
as we do. I want to say a HUGE THANKS to every person, organization,
family, church, etc. that have come together to help our family in all
kinds of ways through this ordeal. I have to say I have been having a
very hard time with this and at times I have questioned God as to why
this is happening, then on Sunday, my pastor, Ken Nienke at Fellowship
Community Church in Salem, prayed with me, as well as, a few other
friends from the church, and I can HONESTLY SAY, I feel at peace with
our decision and I no longer question God about it. He has a plan and
it is not for me to question but to obey and be strong for my children
and husband.......I know GOD still works miracles everyday, and I feel
like everything is going to be ok. We sincerely appreciate everyone's
support, I know the economy is bad and there are a lot of needy families
in our community that also need help, so we are truly blessed through
the help of others! A SPECIAL THANKS GOES OUT TO......the
DAV members in Salem and the VFW, for providing financial donations to
help our family be able to pay for our stay while at Duke. ANOTHER SPECIAL THANKS TO.......members
of our church, Fellowship Communiy Church in Salem for helping our
family financially with the fundraiser of the bracelets a couple
weekends ago, that will also help with our stay at Duke this upcoming
week! A FINAL THANKS TO EVERY SINGLE PERSON THAT PRAYS, WORRIES, AND SUPPORTS OUR FAMILY THROUGH ALL OF THIS!!! We
know there are hundreds of people out there behind the scenes, that we
don't even know that have helped us in various ways and all we can do is
say THANK YOU ALL AND GOD BLESS YOU! If there are others out there that would like to help, we
could use gift cards for groceries, meals etc. There is a Kroger and a
Walmart near where we will be staying. We could also use dinners while
we are here at home when we return. If anybody wants to help just
email me at skykayd@hotmail.com. We are stll accepting donations into:
Dylan Prater Benevolence Fund at any Salem VA Credit Union.
Mail
and flower deliveries should be addressed to:
DYLAN PRATER, Duke
Children's Hospital, Durham, NC 27710.
Please include the child's room
number, if available, and ask correspondents to mark letters clearly as
"Patient Mail."
Thanks, The Prater Family
________________________________________________________________
Tuesday, November 23, 2010 at 12:38pm
Hi everybody,
We
finally made it to the apartment last night around 830pm, so much for
leaving our house at 100pm!! We also had to stop a couple times on the
way here because of Kaylee being fussy.
If
anybody wants to send anything via mail, our address at the apartment
is:
714 Kipling Way, Durham, NC 27713, and WHEN WE RECEIVE DYLAN'S ROOM
# I WILL POST IT, until then please:
ANY mail and flower deliveries should be addressed to DYLAN PRATER, Duke Children's Hospital, Durham, NC 27710. Please include the child's room number, if available, and ask correspondents to mark letters clearly as "Patient Mail." After your child leaves the hospital, mail will be forwarded to your home address. Please note that flowers are not allowed on some intensive care units. THE PHONE # TO OUR APARTMENT IS 919-484-1148, if you have any questions please call this phone#m and due to the circumstances please limit your phone calls to the hospital or my cell. My husband, Mike and his mom, Brenda will be at the apartment phone # most of the time and will be able to answer questions.
I will post more later today after Dylan's pre-op appointments.
Thank you all,
The Prater Family
_________________________________________________________________
Tuesday, November 23, 2010 at 11:22pm
HEY
EVERYBODY, Sorry it took so long to get this out we have had a VERY
LONG DAY! First off, I know everybody wants to know this.......DYLAN'S SURGERY IS scheduled for 1045 TOMORROW,
it will last approx. 4hours. Now, when they take him to the O. R. at
1045, that does not mean the surgeon starts exactly at that
time.......it may be 30 mins after that (for prep time, etc), the neuro
team will call me to tell me that the surgery is starting and I will
notify everybody.
Now
for today, it seemed like we were there ALL DAY......Dylan was seen by
an anesthesiologist pre-op nurse, that went over his history. Then he
saw this awesome lady named...Judy Johnson and she is a Certified Child
Life Specialist. She took us in to this room that looked like a big
play room with a ton of toys, and explained everything to Dylan. She
let him see and touch every piece of instrument that will be going in
his body and explained every tiny step involved with it and how it will
help him. Dylan is very ANXIOUS about IV's and needles in general, ever
since his surgery at UVA in June because he had one IV that was left in
his arm too long and by the time it was taken out it hurt him very
badly! So what this lady did made Dylan feel so much better and he told
her he felt better about everything. Then we got a tour of the hospital
and the pre-op room......Dylan ABSOLUTELY LOVED THIS, because each room
(which is private) has an XBOX 360 IN IT, so guess what Dylan will be
doing while we are waiting for him to go to surgery. : ) So we have to
be at the hospital at 645 am, for his MRI with contrast at 7am, which
means I have to put this "magic numbing cream" on his veins on both
hands at 545am so it can numb his hands to put the IV in him. After the
MRI (will probably last about 30mins) we will go to the pre-op room,
until his surgery, and we will meet his anesthesia team and talk with
the surgeon, Dr. Grant again about the procedure. We were told that
Dylan will have a lot of things on and in his head, he will have an
incision in the back of his skull, where the doc will cut a piece of his
skull off, he will have a tube sticking out of the top of his head to
help monitor any fluid in his brain for a couple of days, and he will
have these round things placed around the outside of his head that the
doctor will use during surgery kind of like a laser beaming into the
actual brain tissue and that part of the tissue will show up on a
computer monitor for the doctor to see better, because everything is so
intricate and tiny in there. On top of all that, his head will be
bandaged all the way around with gauze, and his head will be shaved in
various places for the incisions and placement of round nodules.After
surgery only one person is allowed to stay with him in the P.I.C.U., he
will stay in there a day or 2, then be moved to a private room where 2
people can stay with him. Visitors are allowed, however, there can only
be 2 in the room at a time, and he will be on a floor that is locked
down, we have to have badges to come and go in there.There is also a lot
of stuff on the pediatric floor set up for families and visitors like
activites, etc, so that will be nice for the girls when we take them up
there.OH! Forgot to tell everybody, the other day at school Dylan got
to meet and talk with a cancer survivor that had brain surgery when he
was younger (helped him feel much better), and he told Dylan how he had
named his tumor, so Dylan and him came up with the name "PAPPY" (since
it's called pappillary tumor), and then TODAY, we came up with the
saying, "PEACE OUT PAPPY",
IN HOPES OF KILLING "PAPPY"!!!!! : )
Well
I have to get up at 5am, so I better get to bed, I will have my
computer with me at the hospital tomorrow and I will post updates as I
can. I will also take pics and post them as I can.Talk to you all
tomorrow, please continue the prayers to help destroy PAPPY and all his
friends!
Thanks,
The Prater's
----------------------------------------------------------------------------------------------------------------------------
Wednesday, November 24, 2010 at 12:31pm
OK EVERYBODY, I know you have all been waiting......
Dylan
is in surgery, the neuro-surgeon called us at 1145 to tell us he is
starting to cut into his scalp. When we got here Dylan got his IV put
in, then the doc came in and shaved 4 spots on his head to place the
laser nodules, that kinda hurt Dylan because the doc used a cheap
plastic razor and did not use water or anything to shave the spots!
Then he was taken for his MRI (lasted about 15mins), then we just hung
out in the pre-op room watching Dylan play basketball on the XBOX 360.
During that time the neurosurgeon came in to talk with us and told us
this surgery could last anywhere from 4-6hrs, he feels like it will be
more towards the 6 hour time frame. He talked with us about what he was
going to do and told us the incision will be verticall on the back of
his head, and that he would like to take the tube in his throat out
before he comes to the PICU, but if needed they will still leave it in,
and they will place another IV in his arm and an arterial IV in the
artery of his wrist, these will stay in when he goes to PICU, and of
course he will have bandages wrapped around his head. Dylan was not
scared, I prayed with him, Mike and I gave him lots of hugs and kisses
and I told him all the angels and Jesus will be taking care of him, I
also reminded him of ALL THE PRAYER WARRIORS that we have sending
messages to heaven for the good result, safety, and guidance during this
surgery. We met the anesthesiologists and talked with them about
everythiing, and then they put some "FEEL GOOD JUICE" in his IV and
within 20seconds he was falling asleep! I got kinda nervous because he
went from happy go lucky, laughing, and playing to very quiet, and
looking like he was going to cry! The anesthesiologists told me it's
all normal and the drug they gave him takes affect very quickly.So Dylan
was taken from us in pre-op at 1030 and we did not get the call that
the surgeon was actually starting the surgery until 1145
(it was all
prep time).
So,
we are waiting now, WE NEED OUR PRAYER WARRIORS NOW!!!! Throughout the
surgery we will get updates, as I get them, I will send them to
everyone. I took pictures of everything this morning and will post them
in a little while for everybody to see.
Talk with you all later!
Kerry
| _________________________________________________________________ | |||||
surgery update
|
______________________________________________________________
Thursday, November 25, 2010 at 9:51am
Good morning......HAPPY THANKSGIVING!!!!
First
off let me say, I am sorry about not posting again last night, we got
very busy when Dylan moved to the PICU, and Mike and I had to go eat
something, when we returned to the room Dylan had to get a CT Scan, by
then it was 1130.......I WAS EXHAUSTED, and went back to the apartment
for some sleep while Mike stayed with Dylan.
So.....about
530ish last night the neuro-surgeon came out to talk with us, he yold
us everything went very well and he was pleasantly pleased with the
surgery. H e said there were 3 cysts attached to the tumor, they got
those and the tumor out, it came off the arterial wall linings very
easily without much effort. He said they took extra time at the end of
surgery to look around for any other tumor pieces, several times, and
they could not find anymore tissue!!!! This is AMAZING b/c most of the
time there is tissue left behind! That is NOT TO SAY that it won't
return, b/c these tumors are mostly recurrent, however, I feel like
with all the prayer warriors we have in place and all the messages to
God for our beautiful boy, that may not be the case for us!
After
the conversation with the doctor we were able to come to the PICU where
Dylan was, and he was in and out last night, he HATED the catheter!
He was moving his head, all his limbs, and able to see and sort of talk
to us; his throat is still real scratchy and dry from being intubated
during surgery and he sounds like a cat trying to clear out a furball,
but we suction the stuff out as it comes up. His head is bandaged all
the way around, he has a tube sticking out from the top right of his
head to help monitor any pressure and monitor any fluids, but it won't
be in there very long. He also has a huge vertical incision in the back
middle part of his head, the doctor had to cut into his scalp and
remove a rectangular piece of his skull so he could get to the tumor, so
when the skull was replaced it was screwed back into place using
titanium screws. So needless to say his head hurts. I waited for the
night rounds, around 11pm to see what they had to say,, then I went back
to the apartment to get some sleep while Mike stayed here.
I got back to the hospital this morning a little after 6am, and the doctors came by for rounds at 730am.
The
neurosurgeon, Dr Grant said, Dylan is doing VERY WELL, that he could
have the catheter removed, which has already been done, he can try and
have fluids to drink, they are going to clamp off the valve in head to
see how Dylan does without it being used, he will see a Physical
Therapist to see about some more movement, and we will be moving from
PICU to the Pediatric floor today, YEAH!!!!
I
helped the nurse with changing his gown and getting him positioned in the
bed properly, he was able to help us using his legs and arms to push,
which is WONDERFUL!!!
OK,
had to stop typing, Dylan started throwing up after drinking a tiny bit
of water, so I wiped him down and the nurse and I changed his gown and
bedding, then she gave him meds and he is sleeping comfortable now.
I will update more later as we learn more, and I DESPERATELY NEED COFFEE!
OH! I have taken lots of pics, I am working on them and then will put them on later today.
Thanks,
Kerry
__________________________________________________________________________________
Thursday, November 25, 2010 at 10:34pm
Hi Everybody.... I
just got back to the apartment (915pm) and I am eating dinner, then a
NICE HOT BATH, then bed! Mike is at the hospital with Dylan, he is
still doing well. He is more alert, moving around, talking and they
removed the catheter this morning so he is urinating in the urinal now,
which he is VERY HAPPY ABOUT!
The
doctors and nurses are still monitoring the CSF fluid and pressure in
his brain very closely so that it does not cause infection or increase
again. Unfortunately he did not get moved out of PICU today because the
unit he is supposed to go to is full, so maybe and hopefully tomorrow,
plus the nurse stays in his room with him all the time in the PICU, and
he will not get that close of attention in the other unit b/c the nurse
will have a higher patient to nurse ratio. We sat him up in the bed
today, he is helping us move him using his arms and legs, and he is
slowly moving his head on his own, but he is very sore. He watched a
movie on TV for awhile today but when he talks to us, he whispers instead
of using his voice, probably because his throat is still hurting from
the intubation, and is still very confused about things.
Tomorrow
is a normal working day for the hospital so he will probably get his
MRI and be seen by a Physical Therapist. He is tolerating fluids well
and moved up from water to ginger ale today, so far he is keeping it
down. He is just taking it slow so hopefully he won't throw up
anymore. I have a ton of pictures I know I keep promising to send, but I
have been editing them all day, not quite done yet so hopefully I will
get those out tomorrow some time. Well I am going to relax in a bath
now, I plan on being at the hospital before 730am because that's when
Dr. Grant will come around again with information and rounds.
Thank You ALL, hope you had a great Turkey Day!
Kerry
_________________________________________________________________
_________________________________________________________________
quick update
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________________________________________________________________________
Saturday, November 27, 2010 at 2:34pm
Dylan had a very rough day yesterday so I did not have time to post anything.
The
early morning started out pretty good, Dylan ate some cereal/milk and
drank about 2 cans of grape juice,kept it down and LOVED IT! However,
later he had his arterial IV taken out and that hurt him. Then the
Neuro docs came in and took the wraps off of his head, then they had to
remove the tapes and bandages off the back of his head and he screamed
and cried b/c it hurt so bad, he was squeezing my hand VERY HARD!
Before all this happened he was taken off of IV pain meds and switched
to oral medication which not get into his system as fast for the pain.
Then a couple hours later he was taken to have a one hour MRI where he
had to lay on his back and head the whole time.
I
was able to see the incision on the back of his head it's about 6inches
from the base of the middle of his neck to the top back part of his
head. I took pictures but I have not posted them yet. When he was done
with the MRI, they brought him to his new room 5311, and we have a
private room with a TV, full bathroom, a mini refrigerator, and most
importantly a nice wide chair that pulls out like a sofa into a bed. I
slept on the bed last night and it felt wonderful!
Fast
forward to today.........The neurosurg doctor came by this morning and
said that the MRI looks GREAT and they do not see anything left behind.
They are slowly decreasing the pressure in his brain by using a tube
that is sticking out of the top of his head. They are monitoring this
until they feel like Dylan's body can handle the pressure of fluid on
his own for a period of time, then they will take the tube out of his
head. Once the tube is out they will continue to monitor him until they
feel that everything is stable before discharging him, sooo in a
perfect world, if everything goes well we could be returning home next
week, we'll just have to wait and see.
Physical
therapy came in today and Dylan sat up on the edge of the bed with the
PT holding him, then he stood up and walked a very short distance with
her help. Which is wonderful considering the surgery and the tube in
his head, and Dylan has been laying in the bed everyday until now.
So things are moving along nicely, I will be posting pictures shortly.
Thanks
for all the support and prayers, please continue to pray, we are not
out of the woods yet. Also since Dylan's tumor "PAPPY" is out of his
head, our new saying is "PIECE OUT PAPPY", yes I spelled it properly, it means the piece of tumor is out of his head.
So, talk to you all later................."PIECE OUT PAPPY!!!"
Kerry
___________________________________________________________________________________
Monday, November 29, 2010 at 5:16pm
Sorry
it’s taking so long to get back to all of you! I haven’t had time to
do much of anything, except tend to Dylan, even the girls want me all
the time too, and I need to be here with Dylan b/c Mike can’t handle the
blood or stitches and he does not know what to do when Dylan is in
severe pain like he is right now. Anyways, here is a quick summary: he
had physical therapy again yesterday afternoon and was able to walk a
bit further than the day before! His afternoon went pretty well until
his other IV in his foot blew, which means the fluids they were forcing
in his IV like antibiotics etc, started stinging his veins as it went
into his foot, so they had to take that one out. So, he did not have
anymore IV’s in and they had to call and IV team to put yet another one
in his arm this time and he screamed and cried with that.Last night went
pretty well, he sat and stood at the edge of the bed a couple times,
with my help, and he was able to walk to the bathroom with my help. His
appetite has increased and he kept saying his stiches and tape are
itchy, other than that he had a calm evening.
Today has been HORRIBLE!
The
nurse practitioner for Dr. Grant came in this morning and removed the
tape from over the top of the drain, took out the stitches that held the
drain in the top of his head, then she cleaned the area. After that she
put 2 needles into the top of his head filled with lidicane, to numb
the area from the top of his brain, and then stitched the hole that the
drain came out of and Dylan felt some of that where it had not numbed
completely! During all this I was helping the nurse practitioner, and
letting Dylan squeeze the bejeezees out of my hands, at the same time
blood was gushing out of his head, along the side, down his neck and
into his ear, and he was screaming and crying, I almost cried, but I
held it together! Then she took the bandage off the back of his head
(tape and all), after all this she gave him a brief break while I
cleaned up all the blood and washed him off. Then she took 2 gauze pads
and did a very tight compressed wrapping all the way around his head to
keep everything tight.
This
was all about 1230 today, and since then he has been in excruciating
pain, he has had Motrin, Tylenol and oxycodone, been in and out of
sleep, and he can’t have any more pain meds for another 1 1/2 hrs. He
says it hurts to talk, breath, hiccup, he can barely move around in the
bed let alone sit up in the bed, he just keeps screaming and crying when
he wakes up! He says it feels like there is fluid gushing around his
head and neck, so I had the nurse page neuro, we are waiting for that
right now. I just stepped out of the room for a minute to take a phone
call and he freaked out and started yelling again, told me not to leave
the room. His eyes are very sensitive to light, it hurts them, and he
does not want the TV on or any noise b/c it hurts his head, so I am
sitting here in the dark room with him. OH! And on top of all this we
got moved to another private, bigger room on the 7th floor, room #
7724.
Meanwhile,
physical therapy came by 2x wanting to work with him and I told her it
probably would not happen today because of his severe pain and he can’t
even move side to side in the bed without screaming in pain. He will
not be able to leave the hospital until he can walk long distances
without being dizzy or off balance, walk up and down 8 stairs, and be
able to get in and out of a car (these all have to be done safely &
properly)! Before the drain came out, we had to almost make him keep
Tylenol in his system so that he would not be in pain, and now he is
constantly in severe pain and says the meds are not helping. I got him
calmed down again, thank god for the soothing music I brought with me,
so he is sleeping again, he has not eaten, he is barely drinking
anything, and he is a little constipated. So we will wait and see what
neuro says when they come in. I will try to send an update when I know
something.
Thanks for everything,
PLEASE CONTINUE TO PRAY!
PLEASE CONTINUE TO PRAY!
Kerry Prater
_________________________________________________________________
GREAT NEWS!
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